Advocating Hope and Support for Sickle Cell Warriors
Shem Sickle Cell Advocacy Foundation is a non-profit organization established on 14th June, 2019 and registered on 7th November, 2023. The organization was originally called Sickle Cell Awareness Campaign Group (SCAACG), prior to its registration in 2023. Shem Sickle Cell Advocacy Foundation is dedicated to creating a sickle cell free society through strategic public advocacy efforts worldwide. Our primary objectives include supporting, celebrating, and inspiring individuals living with the sickle cell condition, as well as providing sponsorships, relief materials, scholarship schemes, and entrepreneurship empowerment opportunities.
One of our key initiatives is to sponsor free genotype tests for individuals to raise awareness and promote early detection of the sickle cell trait. Additionally, we aim to establish sickle cell medical centres to provide specialized care and support for those affected by the condition. At Shem Sickle Cell Advocacy Foundation, we are committed to making a positive impact in the lives of individuals with sickle cell disease and their families.
The organization also partners and collaborates with federal, state, and local Government agencies, civil society organizations, other non-governmental organizations, community based organizations, institutions, and individuals especially in raising awareness on sickle cell disease, supporting patients living with the disease.
Mission and Vision
VISION
To create a world free from sickle cell disease, and one where individuals with sickle cell disease can live healthy and fulfilling lives without discrimination or barriers to care.
MISSION
- To stamp down the spread of sickle cell anaemia through strategic public sensitization.
- To support, celebrate and inspire persons living with the Sickle cell condition.
- To provide sponsorships, relief materials and scholarship scheme to Persons living with sickle cell anaemia.
- To Sponsor free genotype test to the public, as well as encourage confirmatory test among people to address the issue of medical error.
Inspiring Journeys from Our Community
What We Do!
1. Awareness Campaigns: Organizing events, workshops, rallies, media and social media campaigns to educate the public about sickle cell disease and promote early detection and treatment.
2. Support Services: Providing emotional support, resources, vocational and life skills training and support, and referrals to individuals and families affected by sickle cell disease.
3. Advocacy: Working with policymakers, healthcare providers, and other stakeholders to advocate for improved healthcare services, research funding, and policies that benefit sickle cell patients.
4. Education: Offering educational materials, seminars, and training programs for healthcare professionals, patients, and the community at large.
5. Fundraising: Organizing fundraising events and campaigns to support the foundation’s programs and services.